BONUS | Adversity, Resilience & MS — feat. Dr. Brandon Beaber, MD

Tune in to a Thanksgiving bonus episode of the Myelin & Melanin Podcast.

Dr. Brandon Beaber, MD

Season 2 ended a few weeks ago, but in the spirit of gratitude and thanks, please enjoy this bonus episode. In this episode, we talk with neurologist and MS specialist Dr. Brandon Beaber, about his recently published book Resilience in the Face of Multiple Sclerosis, and how resilience is an ever-changing concept for people who face adversity like MS. 

You can find Dr. Beaber on Twitter @brandon_beaber, and on his YouTube channel.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

We’ll be back for Season 3 in January 2020, but stay tuned to our social media and YouTube channel for videos, additional bonus episodes and more.

If you enjoy the podcast, please take a minute to leave us a 5-Star review on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace! 

The End of My LEMTRADA Journey — The End of an Era

I fully acknowledge that the title of this post is overdramatic and extra. But that’s how I’ve been feeling.

Yesterday was my monthly LEMTRADA lab day. The phlebotomist comes to my house to collect them. It’s been the same woman for the past almost 5 years — since the beginning of my LEMTRADA journey. She’s been with me as I transitioned from a cane to a walker and finally to a wheelchair. She’s been with me through multiple hospital stays and two several months-long inpatient rehab stints (she came there to collect the labs). She’s been there through two moves — one from my parents’ to my new apartment, and from my apartment back to my parents’. She’s been with me as I had to stop driving. She’s been with me as I had to file (and get approved, thankfully) for SSDI.

Though she doesn’t know it, she’s represented an oddly comforting consistency over the past 5 years. Maybe it’s the Taurus in me — who knows. The LEMTRADA labs represent a benchmark of sorts. They are a timeline of my sad slow decline, post-LEMTRADA. Everything that happens in my life now is filtered through that lens.

LEMTRADA didn’t work for me. In fact, I had to begin another DMT (Ocrevus) after my final infusion in 2016 (in a perfect world, this shouldn’t have been necessary). That said, the labs are also a bitter reminder of how LEMTRADA failed me.

The drug “rules” require that for four years after our final infusion (mine was February 2016) we are monitored monthly to ensure that LEMTRADA isn’t fucking up our organs, system, etc. (any more so than it already viscerally has for me). I am grateful that my thyroid and kidneys have been spared from the drug’s grips over the past five years — a possibility I was warned about when I signed my life away prior to starting LEMTRADA in 2015. I caught a break, after all, I guess.

So, February 2020 is the end of my four year monitoring period. It’ll be the official end of my LEMTRADA journey. The end of an era. I feel oddly sad.

It’s weird.

-Daana

Episode 46 | Out of the Mouths of Babes [ Part II ] & Season 2 Reflections

Tune in to Episode 46 — the Season 2 finale of the Myelin & Melanin podcast!

We started Season 2 with reflections from the children in our lives. We only found it fitting to end Season 2 with part 2 of their conversation. 

Join us for the Season 2 finale of Myelin & Melanin. We’ll be back for Season 3 in January 2020, but stay tuned to our social media and YouTube channel for videos, bonus episodes and more.

If you enjoy the podcast, please take a minute to leave us a 5-Star rating/review on Apple Podcasts. Thanks for helping make Season 2 a success!

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Peace! 

Episode 45 | Social Media, Storytelling and Support: Coping With MS — feat. Ardra Shephard

Tune in to Episode 45 of the Myelin & Melanin podcast!

Ardra Shephard

We are joined once again by one of our favorite MS bloggers, Ardra Shephard. We talk about social media, sharing our stories, and how our coping has changed throughout the many years since our diagnosis.

You can check out Ardra’s blog at trippingonair.com. Find her on social media by searching for Tripping on Air.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Peace! 

Episode 44 | “There Is No Normal Body”: A Conversation with Sonya Renee Taylor

Join us as we talk with award-winning poet, author, and activist, Sonya Renee Taylor about her book ‘The Body is Not An Apology’ and changing our internal narrative about what “normal” is in this ableist society.

Joining Daana and sitting in for Dawn today as guest co-host is Carlos Kareem Windham (who you’ll remember from our series “Beyond Montel: Black Men and MS”). You don’t want to miss this important and engaging conversation.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Peace! 

Episode 43 | A, B or C Your Way Out: Letting $h!t Go with MS — feat. Damian Washington

Tune in to Episode 43 of the Myelin & Melanin podcast!

Damian Washington

Join us for a conversation with MS YouTube Vlogger Damian Washington about holding space, toxic positivity and dealing with ignorant responses to/about MS.

You can find Damian on Instagram, Twitter and his MS YouTube vlog “DigitalRidiculous” — you can also find him at http://damianwashington.com.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter, and Instagram @myelinmelanin to keep abreast of our latest goings-on! You can also find us on YouTube.

Episode 42 | Don’t Be a Looky-Loo: Appropriate Support, Toxic Positivity and MS — feat. Dr. Virginia Seewaldt, PhD

Tune in to Episode 42 of the Myelin & Melanin podcast!

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Dr. Virginia Seewaldt, PhD

Tune in as we are joined again by Clinical Psychologist Dr. Virginia Seewaldt, PhD. We talk with her about the Ring Theory of Support, staying in your lane, and toxic positivity. Don’t miss this engaging conversation.

Check Dr. Seewaldt here on Psychology Today.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter, and Instagram @myelinmelanin to keep abreast of our latest goings-on! You can also find us on YouTube.

Episode 41 | Her Sister’s Keeper: A Sibling’s Relationship With MS — feat. Courtney Townsend

Tune in to Episode 41 of the Myelin & Melanin podcast!

Courtney Townsend

When one person is diagnosed with MS, his or her entire family is diagnosed, by extension. Join us for a candid and heartwarming conversation with Daana’s sister, Courtney who shares her experiences about how MS has impacted her. You don’t want to miss this amazing conversation. 

You can find Courtney on Facebook (Courtney Townsend) and Instagram @iamcourtneyclare.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 40 | “Everybody’s a Celebrity”: Talking MS with Dr. Boster — feat. Dr. Aaron Boster, MD

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Dr. Aaron Boster, MD

Tune in to Episode 40 of the Myelin & Melanin podcast!

Join us for another exciting conversation with the incomparable neurologist/MS specialist — Dr. Aaron Boster, MD. Dr. Boster shares his thoughts about: his MS DMTs of choice; what DMTs he’d never recommend for certain MS patients; MS hacks he’s learned from patients over the years, and just general love and light. 

Find him on Twitter and YouTube @AaronBosterMD.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 39 | New Pathways: Neuroplasticity, Virtual PT and MS — feat. Dr. Gretchen Hawley

Tune in to Episode 39 of Myelin & Melanin!

Dr. Gretchen Hawley

Join us as we discuss neuroplasticity, virtual physical therapy, and the importance of a PT who specializes in MS, with the physical therapist and Episode 39 | New Pathways: Neuroplasticity, Virtual PT and MS — feat. Dr. Gretchen Hawleycertified MS specialist Dr. Gretchen Hawley. You don’t want to miss this intriguing conversation.

You can find Dr. Hawley on IG @doctor.gretchen, on YouTube and on her website http://doctorgretchenhawley.com.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.