Episode 16 — Voices & Choices: Self-Advocacy and MS

Listen to Episode 16 of Myelin & Melanin!

Self advocacy is an essential life skill to develop and hone when navigating a chronic illness like MS. When dealing with a vicious disease that often strips away our independence and control, it is imperative that we use our voices to advocate for ourselves — by asking questions, asserting our agency, and creating boundaries. Join us as we explore this important topic.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Tripping On Air

Tripping On Air. First, what an awesome title (and look at her logo, y’all — everything). Second, I absolutely love her blog. I am looking forward to blog binging (is that a real phrase, or did I make that up) today:

TRIPPINGONAIR

Her Instagram feed has been such an inspiration to me, as I am getting adjusted to life in public on my wheels. I have sheltered myself for months, afraid of what others will think of me. I’m slowly getting out of my funk. It’s been hard, but I am thankful to others for sharing their experiences. It’s not easy. I admire their courage.

This woman is such an inspiration.

Love and Light.

Episode 15 — Put Your Mask on First: Self-Care and MS

Listen to Episode 15 of Myelin & Melanin!

You can’t pour from an empty cup. This is especially true when dealing with a stressful and draining disease like MS. Join us as we share 10 of our most important self-care tips.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 14 — Ordering Disorder: MS, Compulsion & Control

Listen to Episode 14 of Myelin & Melanin!

Ordering disorder. Controlling chaos. These are no easy tasks when MS is the culprit. More importantly, perhaps, is this even possible? Join us as we share our experiences and reflections on these important issues.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

Just Stop — Your Ableism Isn’t Cute

If you find memes like what you see below funny, do some soul searching. Ableism seems to be one of the last acceptable forms of discrimination. Handicapped parking isn’t a privilege for many of us, it’s a necessity. Furthermore, it’s not cute or amusing to hear folks make light of it.

Handicapped parking (or however you refer to it) for those who may not even use mobility aides — especially those with MS — is critical; especially in hot weather. Heat is literally intolerable for many folks with MS. It can wreak havoc on our bodies. It’s excruciating.

This said, insensitive and tone-deaf memes like this are especially offensive. Please take some time to reflect. Below you’ll find a very interesting perspective on ableism, and what you can do to help end it.

Love and Light,

D & D

Episode 13 — We Wear the Mask: Depression, Suicide & MS

Listen to Episode 13  of Myelin & Melanin!

In light of the recent suicides of Kate Spade and Anthony Bourdain, we felt it was important to highlight the topic of suicide and MS. It is important for people to consider that there is no “one size fits all” approach to dealing with suicide — especially as it relates to chronic illness. Join us as we share our thoughts on this important topic.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

Episode 12 — No Way Out: Captivity, Identity & MS

Join us as we reflect on MS as the most vicious kind of captor, and how it alters life, relationships & identity.

Check us out, listen, and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter, and Instagram @myelinmelanin to keep abreast of our latest goings-on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.