Episode 28 — MS and the Cruelest of Intentions: Selma Blair, Awareness & Visibility

Tune in to Episode 28 of Myelin & Melanin!

Selma Blair and the Instagram post disclosing her MS in October 2018.

MS has been all over the media this week! First, it was the sighting of actress Selma Blair (who disclosed she has MS via Instagram in October 2018) with her fabulous cane on the red carpet at the 2019 Oscars. Then, fast forward to the interview she did with Robin Roberts on Good Morning America a few days later. Her candid, brave and transparent interview has been the talk of social media. And for good reason — it is rare that chronic illness and disability are given any visibility (especially in Hollywood). It was a beautiful moment. The awareness she brought to multiple sclerosis is priceless.

One of our favorite MS bloggers, Ardra Shephard from the blog “Tripping on Air”.

Join us as we share our reflections on Selma Blair’s interview, as well as discuss the concept of disability visibility. We also discuss an article written by one of our favorite MS bloggers — titled “Why Is Selma Blair So Important Right Now”, and how her discussion of mobility aids mirrors our own realities.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 27 — Disclosure is Daunting: Employment and MS

Listen to Episode 27 of Myelin & Melanin!

Is disclosure important? How much do I disclose? These are daunting questions to consider when faced with disclosing one’s MS to an employer. While the ADA exists to protect people with disabilities, there are many things to consider when asking for accommodations and exercising our rights under this law.

Join us as we discuss the benefits of disclosure, as well as the uncertainty and shame that can often accompany this challenging task.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 26 — A Fight Song: Talking MS with Masta Ace

Listen to Episode 26 of Myelin & Melanin!

Masta Ace is a global hip-hop artist whose career has spanned over three decades. His most recent album, “A Breukelen Story” (with producer Marco Polo) — released in November 2018 — features the track “Fight Song” (feat. Pharoahe Monch) — a powerful glimpse into the reality of MS.

He was diagnosed with MS in 2000, but did not disclose it publicly until 2013.

Join us as we talk with him about his MS journey — we chat about diet, exercise, his career, and what keeps him sane. You don’t want to miss this exciting episode. It was such an honor to talk with him.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 25 — The Sum of Our Parts: Continuous Trauma, Anxiety and MS — feat. Dr. Virginia Seewaldt

Listen to Episode 25 of Myelin & Melanin! It’s our one year anniversary!

Being diagnosed with MS is a terrifying event. Being diagnosed with a chronic, potentially disabling and incurable disease is a traumatic event. It doesn’t end there, though. MS is a series of traumas — its unpredictability, and progressive nature create a lifelong litany of traumatic events that people with MS live with. Bring on the anxiety. Bring on the stress. Bring on a potential exacerbation due to the stress. It’s a cycle.

Dr. Virginia Seewaldt, PhD

Join us as we welcome psychologist Dr. Virginia (Ginny) Seewaldt, who talks us through some of these concepts as well as some fantastic techniques for managing anxiety in light of the continuous stress that MS brings. She even walks us through some of these techniques. You don’t want to miss this episode!

We also need to mention that today, January 19th, marks the one year anniversary of the podcast! Thank you all for listening and being on this journey with us.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify. Google Play Music, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 24 — Out of the Mouths of Babes: Kids’ Perceptions of MS — Part One

Listen to Episode 24 of Myelin & Melanin! Season 2, y’all!

Most people who understand MS will argue (and we agree) that when one person is diagnosed with MS, it’s not just that person — the entire family has received the diagnosis. This does not just include adults — it affects children as well. Join for part 1 of our discussion of children’s perceptions of MS. We are joined by Dawn’s 7-year old son, and Daana’s 11-year old nephew who reflect on their perceptions of MS. We also focus on some of the hard questions. When do you disclose you have MS to the children in your life? What are the benefits? What are the drawbacks? You don’t want to miss this exciting episode.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify. Google Play Music, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!