Episode 20 — Tricky Territory: Relationships and MS

Listen to Episode 20 of Myelin & Melanin!

Relationships are complicated enough by themselves. Add multiple sclerosis to the mix and the complexity is multiplied. When do you divulge that you have MS? How do you approach the topic? To tell or not to tell? Join us as we tackle these oftentimes tricky relationship questions.

Check us out, listen and subscribe to the podcast on Apple Podcasts or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 19 — MS and the Case of a Stolen Life

Listen to Episode 19 of Myelin & Melanin!

MS is a thief. There’s no other (or softer) way to put it. It robs us, and what we’re left with is often a shell of what used to be. Join us as we grapple with this layered issue.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 18 — Broke: Coping with the Costs of MS

Listen to Episode 18 of Myelin & Melanin!

There are many costs associated with being diagnosed with a chronic, progressive disease like MS. These are realities that can leave one…BROKE – literally and figuratively. Not only does the emotional impact often leave us feeling broken, the financial impact is overwhelming and quite often devastating. Join us as we discuss the costs of living with MS.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 17 — Shift the Paradigm: Living Your Best Life Despite MS

Listen to Episode 17 of Myelin & Melanin!

Living life to the fullest with multiple sclerosis is hard, but it’s not impossible. Join us as we talk with Dr. Aaron Boster, MD, a clinical neuroimmunologist who specializes in treating MS. He shares with us the concept of “paradigm shifting” as a way to reframe the narrative, change your lens, and live your best life — in spite of MS. We’ll also share our own tips. [ Please forgive our technical difficulties. ]

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 16 — Voices & Choices: Self-Advocacy and MS

Listen to Episode 16 of Myelin & Melanin!

Self advocacy is an essential life skill to develop and hone when navigating a chronic illness like MS. When dealing with a vicious disease that often strips away our independence and control, it is imperative that we use our voices to advocate for ourselves — by asking questions, asserting our agency, and creating boundaries. Join us as we explore this important topic.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Tripping On Air

Tripping On Air. First, what an awesome title (and look at her logo, y’all — everything). Second, I absolutely love her blog. I am looking forward to blog binging (is that a real phrase, or did I make that up) today:

TRIPPINGONAIR

Her Instagram feed has been such an inspiration to me, as I am getting adjusted to life in public on my wheels. I have sheltered myself for months, afraid of what others will think of me. I’m slowly getting out of my funk. It’s been hard, but I am thankful to others for sharing their experiences. It’s not easy. I admire their courage.

This woman is such an inspiration.

Love and Light.