Just Stop — Your Ableism Isn’t Cute

If you find memes like what you see below funny, do some soul searching. Ableism seems to be one of the last acceptable forms of discrimination. Handicapped parking isn’t a privilege for many of us, it’s a necessity. Furthermore, it’s not cute or amusing to hear folks make light of it.

Handicapped parking (or however you refer to it) for those who may not even use mobility aides — especially those with MS — is critical; especially in hot weather. Heat is literally intolerable for many folks with MS. It can wreak havoc on our bodies. It’s excruciating.

This said, insensitive and tone-deaf memes like this are especially offensive. Please take some time to reflect. Below you’ll find a very interesting perspective on ableism, and what you can do to help end it.

Love and Light,

D & D

Episode 13 — We Wear the Mask: Depression, Suicide & MS

Listen to Episode 13  of Myelin & Melanin!

In light of the recent suicides of Kate Spade and Anthony Bourdain, we felt it was important to highlight the topic of suicide and MS. It is important for people to consider that there is no “one size fits all” approach to dealing with suicide — especially as it relates to chronic illness. Join us as we share our thoughts on this important topic.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

Episode 12 — No Way Out: Captivity, Identity & MS

Listen to Episode 12  of Myelin & Melanin!

Join us as we reflect on MS as the most vicious kind of captor, and how it alters life, relationships & identity.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

Episode 11 – What About Me? Fear, Uncertainty & MS

Listen to Episode 11  of Myelin & Melanin!

Join us as we tackle the issues of fear and uncertainty — and the roles that they play in the lives of those with MS. What will happen to me in the future? Will I get worse? Will I get married? Will I end up alone? Tune in as we share our experiences surrounding these issues. Feel free to engage with us, and share your comments and questions.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

Episode 10 – The Eleventh Time Might Be The Charm: Isolation & MS

Listen to Episode 10  of Myelin & Melanin!

Tune in as we tackle a very serious topic — isolation and MS. MS is a lonely disease. Often, we find ourselves self-isolating at various times and for a myriad of reasons. Other times, the isolation can feel imposed on us by friends and family who may be well meaning, yet oblivious to the impact that their actions (or lack thereof) have on us. Join us as we explore this tough but important topic. Feel free to engage with us, and share your comments and questions.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

Isolation

The article below touches on some of what we’ll be discussing in Episode 10, but to be honest, how the author ends the article doesn’t sit quite right with me. She writes, “I don’t feel like it’s a bad thing to kind of go on a ‘mental vacation’ for a night, etc. but be careful on how far you isolate yourself and for how long… because you don’t want to push people away that really truly care about you.”

She’s right, but that said, I’m not sure it’s quite that simple. There are a myriad of reasons why we self-isolate. We’ll touch on a few of those reasons in Episode 10.

Nonetheless, there’s some good food for thought, here.

Love & Light.

Episode 9 – Musings on Medical Marijuana

Listen to Episode 9  of Myelin & Melanin!

Tune in as we share our musings on the benefits of (and different modes of consuming)medical marijuana for MS symptoms.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

Episode 8 — LEMTRADA Lessons

Listen to Episode 8  of Myelin & Melanin!

Join us as we share our LEMTRADA stories. We reflect on life before, during and after LEMTRADA. Would we do it again?

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.