Episode 31 | Triggered: MS and the Power of Language — feat. Lydia Guillory

Tune into episode 31 of the Myelin & Melanin podcast.

Lydia Guillory — writer, advocate and fellow Mser

Language is powerful. With a chronic and incurable disease as variable and as misunderstood as MS, you’ll often stumble upon confusing slogans that paint trite and problematic pictures of what MS looks like (or should look like).

Join us as we talk with Lydia Guillory, a writer, an advocate and fellow MSer, about the troublesome (and sometimes triggering) language of MS. Find Lydia on Instagram @love.laugh.lydia .

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 30 | Ever Cloudy — Celebrities, Mixed Messages and MS

Tune in to Episode 30 of the Myelin and Melanin podcast!

Art Alexakis, from the band Everclear. Image from Everclear website

This week, another celebrity publicly disclosed an MS diagnosis. Art Alexakis, from the band Everclear, announced his recent MS diagnosis on Instagram and in an open letter to his fans on the band’s website. Almost immediately, there were people (namely MSers) who expressed confusion about the information he touted about his “prognosis” (in and of itself, a precarious word to use to describe MS).

On one of the last days of MS Awareness Month, join us as we discuss the importance of celebrities (and perhaps their neurologists) using their platforms to disseminate clear, honest and realistic information about multiple sclerosis. The amount of conflicting information often spread about the disease makes it confusing, and creates unrealistic expectations about this unrelenting disease.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 29 — MS Awareness Month: The Good, the Bad and the Ugly

Tune in to Episode 29 of the Myelin and Melanin podcast!

March is MS Awareness Month. Yawn. Yeah, we said it. Join us as we share our thoughts about MS Awareness Month, and the need to highlight the whole truth about MS. The media often tells a one sided story about the reality of MS (this includes the false narrative that the drug companies tell in their sometimes cringeworthy commercials). We feel that it does a disservice to the MS community to not be up front and honest about the often harsh realities that this disease deals us.

One of our favorite MS bloggers, Ardra Shephard from the blog “Tripping on Air”.

Once again, we discuss the fabulous Tripping On Air blog, and her frank discussion about why March is often frustrating for a lot of MSers. You can check her blog out at  trippingonair.com (she’s on Instagram @ms_trippingonair and Twitter @tripping_onair)

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 28 — MS and the Cruelest of Intentions: Selma Blair, Awareness & Visibility

Tune in to Episode 28 of Myelin & Melanin!

Selma Blair and the Instagram post disclosing her MS in October 2018.

MS has been all over the media this week! First, it was the sighting of actress Selma Blair (who disclosed she has MS via Instagram in October 2018) with her fabulous cane on the red carpet at the 2019 Oscars. Then, fast forward to the interview she did with Robin Roberts on Good Morning America a few days later. Her candid, brave and transparent interview has been the talk of social media. And for good reason — it is rare that chronic illness and disability are given any visibility (especially in Hollywood). It was a beautiful moment. The awareness she brought to multiple sclerosis is priceless.

One of our favorite MS bloggers, Ardra Shephard from the blog “Tripping on Air”.

Join us as we share our reflections on Selma Blair’s interview, as well as discuss the concept of disability visibility. We also discuss an article written by one of our favorite MS bloggers — titled “Why Is Selma Blair So Important Right Now”, and how her discussion of mobility aids mirrors our own realities.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 27 — Disclosure is Daunting: Employment and MS

Listen to Episode 27 of Myelin & Melanin!

Is disclosure important? How much do I disclose? These are daunting questions to consider when faced with disclosing one’s MS to an employer. While the ADA exists to protect people with disabilities, there are many things to consider when asking for accommodations and exercising our rights under this law.

Join us as we discuss the benefits of disclosure, as well as the uncertainty and shame that can often accompany this challenging task.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 26 — A Fight Song: Talking MS with Masta Ace

Listen to Episode 26 of Myelin & Melanin!

Masta Ace is a global hip-hop artist whose career has spanned over three decades. His most recent album, “A Breukelen Story” (with producer Marco Polo) — released in November 2018 — features the track “Fight Song” (feat. Pharoahe Monch) — a powerful glimpse into the reality of MS.

He was diagnosed with MS in 2000, but did not disclose it publicly until 2013.

Join us as we talk with him about his MS journey — we chat about diet, exercise, his career, and what keeps him sane. You don’t want to miss this exciting episode. It was such an honor to talk with him.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!