Episode 23 — Beyond the Physical: The Other Harsh Realities of MS

Listen to Episode 23 of Myelin & Melanin!

Join us again to hear more musings about Daana’s ongoing rehab journey, and to listen as we reflect on some of  the harsh realities of MS that extend beyond its physical manifestations.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify. Google Play Music, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 22 — Emotional Intelligence: Dignity, Sensitivity & The Power of Language

Listen to Episode 22 of Myelin and Melanin!

Tune in to hear about Daana’s rehab experience, as well as musings about emotional intelligence and the power of language.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify. Google Play Music, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 21 — THC and CBD and MS, Oh My: Marijuana as Medicine

Listen to Episode 21 of Myelin and Melanin!

JD, Wellness Consultant at Greenhouse Wellness

Cannabis, especially as it relates to its benefits for chronic health conditions like MS, has been a hot topic lately. It is one that is very personal to us. As medical (and even recreational) marijuana is being legalized more and more across the U.S. (and the world), we felt it was important to further explore this topic. Join us as we talk with JD, a Wellness Consultant at GreenhouseWellness in Maryland. He educates and enlightens us, while demystifying this fascinating topic. Check out Greenhouse Wellness on the web: www.greenhousewellness.com, on Instagram @greenhousewellnessmd and Facebook @greenhousewellness — they are fantastic.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify. Google Play Music or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Airport Anxiety

Check out the following article (below) that was published by msconnection.org. It deals with some of the anxieties and insecurities that people MS feel when traveling (in airports, specifically).

Take some time to check it out. When you’re done, check out Episode 7 (from way back in March) of our podcast where we touch on some similar issues.

This excerpt, in particular, touched me:

“Why did this feel like such a big deal to me? Because my “disability” is now on show for all to see. Like being naked in public. It was the only thing that had ever made my invisible illness visible. It was scary. In some ways it was like being diagnosed all over again, but this time, people saw what they didn’t see before. They saw a visual representation of MS. My MS.”

Wow. Yes.

Love & Light.

D & D

Episode 20 — Tricky Territory: Relationships and MS

Listen to Episode 20 of Myelin & Melanin!

Relationships are complicated enough by themselves. Add multiple sclerosis to the mix and the complexity is multiplied. When do you divulge that you have MS? How do you approach the topic? To tell or not to tell? Join us as we tackle these oftentimes tricky relationship questions.

Check us out, listen and subscribe to the podcast on Apple Podcasts or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 19 — MS and the Case of a Stolen Life

Listen to Episode 19 of Myelin & Melanin!

MS is a thief. There’s no other (or softer) way to put it. It robs us, and what we’re left with is often a shell of what used to be. Join us as we grapple with this layered issue.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

[ Episode 17 Recap ] Shift the Paradigm: Living Your Best Life Despite MS

Changing your way of thinking is a big adjustment for a lot of people. Of course, we go through life expecting our lives to look different as we age, but when it comes to those of us with MS that’s a hard pill to swallow.

In episode 17 we talked about how difficult it can be to accept the fact that yes, life has changed, & we HAVE to alter our lives a bit.  So what does that look like?  For those of us with MS, it means we paradigm shift.  This week we had the pleasure of having a brilliant neurologist, Dr. Aaron Boster, provide us with vital information about paradigm shifting, and what it looks like for Multiple Sclerosis patients.  Dr. Boster of Ohio Health MS Center in Columbus Ohio says that paradigm-shifting is, learning how to adapt despite the MS challenges that step in your way.  Take a look at his video on Youtube about this topic and ask yourself if there are areas in your life that can benefit from a shift.

Dr.B discusses the concept of “Paradigm Shifting” to thrive despite having Multiple Sclerosis. Multiple Sclerosis can result in loss of functions (for example balance). When this occurs it can be challenging to learn to adapt and eventually overcome, despite this new limitation. Learning a new DIFFERENT way to accomplish the old tasks using new ways can result in success. Paradigm shifting is important.”

During the podcast, both Daana & I mentioned the emotional toll it can take when you find yourself living a new normal.  Quite often this “normal” isn’t one that we are ready to accept into our lives.  That’s OK!  There is a process when planning and thinking about how life will look as you go through the phases MS.

Start with changing your narrative then allow the shifting to begin.  Be KIND and GENTLE with yourself, remember this is a “marathon and not a sprint.”

Happy shifting MS warriors!

Dawn & Daana

Episode 18 — Broke: Coping with the Costs of MS

Listen to Episode 18 of Myelin & Melanin!

There are many costs associated with being diagnosed with a chronic, progressive disease like MS. These are realities that can leave one…BROKE – literally and figuratively. Not only does the emotional impact often leave us feeling broken, the financial impact is overwhelming and quite often devastating. Join us as we discuss the costs of living with MS.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 17 — Shift the Paradigm: Living Your Best Life Despite MS

Listen to Episode 17 of Myelin & Melanin!

Living life to the fullest with multiple sclerosis is hard, but it’s not impossible. Join us as we talk with Dr. Aaron Boster, MD, a clinical neuroimmunologist who specializes in treating MS. He shares with us the concept of “paradigm shifting” as a way to reframe the narrative, change your lens, and live your best life — in spite of MS. We’ll also share our own tips. [ Please forgive our technical difficulties. ]

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!