Episode 97 | This Part: Intimacy & MS (Realm 3, Part 1) — feat. Emily Royce

Get ready for Realm 3 (Part 1)! We’re taking the concept of intimacy further. Today we’re joined by Pleasure Activist, Somatic Sex Educator, and MSer Emily Royce. 

Emily Royce is a Somatic Sex Educator and Certified Sexological Bodyworker. Her decade journey with MS has involved many lifestyle and holistic healing routes and she is a Reiki Master Teacher and Kundalini and Yin Yoga Instructor as part of that. But it was not until she stepped into authentic movement via dance, that she discovered her sensuality was going to be key to her healing. This led to a deep dive into the world of Tantra and her current path of service to pleasure activism and making sex accessible to all. 

Find Emily on Instagram @chronic.pleasure, or her website http://beloveandbeloved.com.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 96 | This Part: Intimacy & MS (Realm 2) — feat. Sara Youngblood Gregory

We’re still talking intimacy! In Realm 2, we talk with writer Sara Youngblood Gregory about bondage, disability, and liberation. Her article “As A Disabled Person, I Love Bondage. Here’s Why” was published in the Huffington Post in July 2020.

Sara joins us again later in the series as well — we’re here for it!

Sara Youngblood Gregory is a lesbian poet and culture writer. In addition to serving on the board of the lesbian literary and arts journal Sinister Wisdom, Sara is published in Vice, Jezebel, and The Huffington Post, among others.

Find her on Twitter @s_youngblood_g or on Instagram @sinister.spinster. Check out her website: https://saragregory.org/

Check out her article “As A Disabled Person, I Love Bondage. Here’s Why” here: https://www.huffpost.com/entry/bondage-disability-empowerment_n_5f0c6bf2c5b63a72c344df6e

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 95 | This Part: Intimacy & MS (Realm 1) — feat. Keyonna Renea

Intimacy. We’re taking you on a journey. Join us for Realm 1 — today we’re joined by Keyonna Renea. We chat about access intimacy, vulnerability, agency, and more.

We first discovered the term “access intimacy” on a 2011 post on Mia Mingus’ (check her out on Instagram @mia.mingus) blog “Leaving Evidence” — https://leavingevidence.wordpress.com/2011/05/05/access-intimacy-the-missing-link/

We dig right in and chat about what that concept means to us.

Keyonna is a portrait and boudoir photographer, coach, and wellness advocate “empowering women to live their one delicious life and thrive.” She’s also a fellow MSer.

Keyonna opened up our first intimacy series “That Part: Intimacy & MS” — check out Episode 63 to hear her MS story.

You can find Keyonna on IG @keyonnarenea or @diagnosed.determined. You can also find her at www.keyonnarenea.com

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

TRAILER | This Part: Intimacy & MS — A Series

On September 5, 2020, our series “This Part: Intimacy & MS” starts. We’re taking you on a journey. Our first intimacy series “That Part: Intimacy & MS” peeled back the layers — helping us reflect on all of the elements that help one frame intimacy (especially as it relates to MS). In this series — we’re going deeper.

Kink, bondage, pleasure, surrender, communication, connection, liberation, trust, disability, empowerment, CONSENT, control — all the things.

What you’re listening to today is part of a longer conversation we had with Mistress Magenta — a dominatrix and fellow MSer. Don’t miss this engaging discussion.

And get ready for an exciting ride.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 93 | “Surrender’s My Jam”: Agency, Energy and Intimacy — feat. Kianga Ford

Today we are joined by thought leader and life coach Kianga Ford. We chat about energy, agency, and surrender — topics that are the perfect precursors to our upcoming series, “This Part: Intimacy and MS”.

Kianga Ford is a thought leader, coach, facilitator, and speaker. She is the founder of Love & Freedom Education, where she works with curious adults on understanding contemporary masculinity and why it’s essential to the full realization of the feminine rising and to the expression of our deepest human potential.  She is also the co-founder of Becoming Free Humans, a project that explores emergent paradigms for living and working and provides visionary support to the individuals and organizations giving them form.

She holds an MA/Ph.D. (ABD) and an MFA from the foremost programs in her fields. She is also a certified Orgasmic Meditation trainer and life coach.

She brings the full range of her training in critical inquiry and transformational experience to her live events, online courses, coaching, and consulting.  She is currently a digital nomad, hosting regular online programs and working with individual and organizational clients around the world.

Find Kianga on Facebook:

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

BONUS | “I’m Just Here For a Good Time”: The Nuances of MS Disclosure — feat. Marcia Jones

Enjoy our bonus episode — a continuation of our conversation with artist Marcia Jones from Episode 89. We chat about the nuances of disclosure and

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gendering MS.

Yes, we’re kind of problematic, but…

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

BONUS |”I’m Just Here For a Good Time”: The Nuances of MS Disclosure — feat. Marcia Jones

Enjoy our bonus episode — a continuation of our conversation with artist Marcia Jones from Episode 89. We chat about the nuances of disclosure and gendering MS. Yes, we’re kind of problematic, but… You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin.

Episode 91 | MS and an HSCT Journey — feat. Tanya-Marie Paul

Join us as we welcome back vlogger, fellow MSer, and HSCT recipient, Tanya-Marie Paul to the show. We chat, today, about her MS and HSCT journeys.

Tanya-Marie was diagnosed with MS in June of 2003 although devastated at the time, she fought ahead. Since then she has raised 2 children, graduated from college and became a MS ambassador traveling the country speaking to our community this is what she calls her passion job.

Recently, she underwent HSCT after multiple DMTs failed her and she vlogs about it. Tanya-Marie currently lives in NJ and is single but accepting applications. When not working at her day job or her passion job, she is always plotting to get to the beach.

Find Tanya-Marie on IG and Twitter @tanyamarie_p. Her YouTube vlog is http://youtube/TanyaMarieP

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

BONUS | Connecting the Black MS Community to Research — feat. Tracy A. Todd

Today we are joined by author, advocate, and fellow MSer Tracy A. Todd. Tracy shares info with us about her forthcoming app — BAAMS. Don’t miss this informative talk.

Tracy A. Todd describes herself as an author, artist, and advocate for MS.  Diagnosed with MS in 2002, Tracy has overcome neurological challenges since adolescence and has been fighting back ever since. The local NMSS chapter regards Tracy as an MS Ambassador, and a video for the newly diagnosed produced by the MSAA features her as a presenter.

Tracy served as a facilitator for the SF Bay Area African Americans with MS Self-Help Group where, during her three years of service, members supported as they shared the nuances of MS within the Black population. Tracy has had speaking engagements with pharmaceutical companies and health care professionals who benefited from information relayed from the ‘patient-perspective.’

She’s written her medical memoir, “When The Body Says No — A Learn, Laugh, Love Story” and founded ‘We Write for the Fight’, an online MS writers group that has produced four volumes of Something On Our Minds, Anthologies to Benefit the National MS Society and the Accelerated Cure Project.

Tracy is a member of the Engagement Committee for the iConquer MS research portal and is currently developing an app for the Black/African American MS community in an effort to bridge the gap between the BAAMS community and  MS Health Care Professionals and Researchers. Tracy holds a BS in Information Systems and resides in Northern California.

Check out her website: http://tracyatodd.com

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 89 | MS and Art as Spiritual Practice — feat. Marcia Jones

Today we are joined by noted contemporary artist, art professor, and fellow MSer, Marcia Jones. We chat about MS and art as a spiritual practice

Marcia Jones received her BA in Fashion Design from Clark Atlanta University, completed studies at the Art Student League NY, and earned her Master of Fine Art in painting from the University of North Carolina at Greensboro. and is currently seeking programs to pursue her Doctorate in Education.This image has an empty alt attribute; its file name is IMG_7593-2.jpg

Jones served as a W.E.B Dubois Faculty Fellow at Clark Atlanta University where she was a Lecturing Professor of Art. Jones was selected by Fulton County Arts to attend The Caversham Printmaking Fellowship in South Africa, serving as a Visiting Artist at the University of Kwazulu Natal.

In 2006, she received an invitation to attend the Spelman College Taller Portobello Artist Colony in Taller Portobello, Panama. Jones was awarded by the Historical Auburn Ave. Creative Council a 9 month Artist Residency at the Studioplex Arts Complex Atlanta, GA, and conducted her Visual Emotion workshops at the SE Woman Herbalist Conference.

In 2011 Jones was selected as The Mc Coll Center for Visual Arts Harvey B Gantt Winter Resident, Charlotte NC. She worked as an Adjunct Professor of Art at Central Piedmont Community College, Charlotte NC where she was an Adjunct Professor at The Art Institute Charlotte, Johnson C Smith University.

Find Marcia on IG at @marciajonesart.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

BONUS | Reframing Your “Productivity” Narrative #BecauseMS — Paid Partnership with Healthline

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…⠀

Join us today as we reflect on our most recent chat on the MS Healthline app (on 8/4) in the “Wellness” group! We talked about what it means to reframe your narrative when MS impacts your ability to work.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.