Episode 52 | Black Women, Healthcare & MS: Reflections — feat. Sydney B.

Tune in to episode 52 of the Myelin & Melanin Podcast.

We are joined today by Sydney B. to reflect with us on navigating the healthcare system as Black women with MS, and the unique challenges that we face.

Sydney B.

You can find Sydney on Instagram @thesydneyrae.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

In addition, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Episode 52 | Black Women, Healthcare & MS: Reflections — feat. Sydney B.

We are joined today by Sydney B. to reflect with us on navigating the healthcare system as a Black woman with MS, and the unique challenges that we face. You can find Sydney on Instagram @thesydneyrae. You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin.

Episode 51 | MS is MS: Labels, Progression & TMI — feat. Dr. Aaron Boster, MD

Tune in to Episode 51 of the Myelin & Melanin Podcast!

Dr. Aaron Boster, MD

Join us as we talk with one of our favorite guests — neurologist & MS specialist Dr. Aaron Boster, MD. We chat about clinicians’ responsibility to know and respect their patients’ “TMI thresholds”, and the problematic nature of MS “categories”.

We also talk about Dr. Boster’s new practice — The Boster Center for Multiple Sclerosis! Check it out at http://www.bosterms.com

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

In addition, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Episode 51 | MS is MS: Labels, Progression & TMI — feat. Dr. Aaron Boster, MD

Join us as we talk with one of our favorite guests — neurologist & MS specialist Dr. Aaron Boster, MD. We chat about clinicians’ responsibility to know and respect their patients’ “TMI thresholds”, and the problematic nature of MS “categories”. We also talk about Dr. Boster’s new practice — The Boster Center for Multiple Sclerosis!

Episode 50 | M&M Party Line #1 — feat. Ardra Shephard, Damian Washington & Carlos Kareem Windham

We made it to 50! To celebrate this milestone, join us for the first-ever Myelin & Melanin Party Line! The party line is an opportunity for us to talk with some of our faves in the MS Community about provocative topics in the MS world.

Today we are joined by Ardra Shephard (www.trippingonair.com), Damian Washington (http://youtube.com/nostressms) and Carlos Kareem Windham (https://www.instagram.com/elcaballonegrito).

You don’t want to miss this engaging conversation.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — http://patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

In addition, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace! 

Episode 50 | M&M Party Line #1 — feat. Ardra Shephard, Damian Washington & Carlos Kareem Windham

We made it to 50! To celebrate this milestone, join us for the first-ever Myelin & Melanin Party Line! The party line is an opportunity for us to talk with some of our faves in the MS Community about provocative topics in the MS world.

Episode 49 | A Shifting Narrative: On Being Black With MS — feat. Dr. Mitzi Joi Williams, MD

Tune in to the Season 3 opener of the Myelin & Melanin Podcast!

Dr. Mitzi Joi Williams, MD

Join us as we talk with noted neurologist & MS specialist Dr. Mitzi Joi Williams, MD. We talk about narratives surrounding MS in the Black population, resilience and more. You don’t want to miss this engaging conversation.

You can find Dr. Williams on Instagram @thenerdyneurologist and on her website at https://joilifewellness.com/

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon http://patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

If you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace! 

Episode 49 | A Shifting Narrative: On Being Black With MS — feat. Dr. Mitzi Joi Williams, MD

Join us for the Season 3 opener as we talk with noted neurologist & MS specialist Dr. Mitzi Joi Williams, MD. We talk about narratives surrounding MS in the Black population, resilience and more. You don’t want to miss this engaging conversation.

2019 Reflections

What an incredible year 2019 has been!

I smile as I reflect on the highs and lows of 2019. We started the season with incredible guests that kept us in awe, (MastaAce), became filled with optimism (Dr. Boster), fed our soul (Dr. Seewaldt), and made us squeeze our loved ones a little tighter because of how they love us (Courtney Townsend). Each episode is a learning experience for us, along with time to grow and think of more exciting content to bring our listeners.

This Multiple Sclerosis journey is by far one of the toughest burdens we manage, but our dedication and passion to the podcast (and listeners) are a few reasons why we refuse to stop. If you recall, Daana recorded many season 2 episodes from the hospital and rehab, then after 18 years of living in Washington, D.C., I packed up my home and son (by myself) moving twelve hours away. Both of these incidents occurred #BecauseMS. MS is terribly unforgiving, and when it roars, its energy runs you over with a vengeance.

Thank you for those who have listened to Myelin & Melanin since the first day we aired season 1 episode 1! We also greatly appreciate our new comrades tuning in and always providing heartfelt comments. 2020 has a lot in store for all of us, and hopefully you can feel our excitement rumbling. Make sure to listen for the alert when the Season 3 opener airs on January 18th!

Have a fantastic New Year’s eve everyone!

-Dawn

BONUS | Stories from Across the Pond — feat. Gemma Allen & Laura Thorne

Happy Holidays! In the spirit of giving and the holiday season, we’re sharing one more bonus episode before Season 3 begins streaming January 18, 2020.

Gemma Allen

All MS is different. We know this of course, but it was put into a greater perspective as we recorded this bonus episode from our forthcoming “Stories From Across the Pond” series. We had the pleasure of chatting with Gemma Allen [ of Shift.MS] and Laura Thorne [ of www.lovelemontree.com ] — both from the UK — about their MS stories. 

Laura Thorne

You can find Gemma and Laura on Instagram, respectively, at @gems1247 and @lovelemontreeuk.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

We’ll be back for Season 3 in January 2020, but stay tuned to our social media and YouTube channel for videos and more.

If you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace! 

BONUS | Stories from Across the Pond — feat. Gemma Allen & Laura Thorne

Happy Holidays! In the spirit of gift-giving and the holiday season, we’re giving you one more bonus episode before Season 3 begins streaming January 18, 2020. All MS is different. We know this of course, but it was put into a greater perspective as we recorded this bonus episode from our forthcoming “Stories From Across the Pond” series.

BONUS | Adversity, Resilience & MS — feat. Dr. Brandon Beaber, MD

Tune in to a Thanksgiving bonus episode of the Myelin & Melanin Podcast.

Dr. Brandon Beaber, MD

Season 2 ended a few weeks ago, but in the spirit of gratitude and thanks, please enjoy this bonus episode. In this episode, we talk with neurologist and MS specialist Dr. Brandon Beaber, about his recently published book Resilience in the Face of Multiple Sclerosis, and how resilience is an ever-changing concept for people who face adversity like MS. 

You can find Dr. Beaber on Twitter @brandon_beaber, and on his YouTube channel.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

We’ll be back for Season 3 in January 2020, but stay tuned to our social media and YouTube channel for videos, additional bonus episodes and more.

If you enjoy the podcast, please take a minute to leave us a 5-Star review on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace! 

BONUS | Adversity, Resilience & MS — feat. Dr. Brandon Beaber, MD

Season 2 ended a few weeks ago, but in the spirit of gratitude and thanks, please enjoy this bonus episode. In this episode, we talk with neurologist and MS specialist Dr. Brandon Beaber about his recently published book ‘Resilience in the Face of Multiple Sclerosis’, and how resilience is an ever-changing concept for people who face adversity like MS.  You can find Dr. Beaber on Twitter @brandon_beaber, and on his YouTube channel.

The End of My LEMTRADA Journey — The End of an Era

I fully acknowledge that the title of this post is overdramatic and extra. But that’s how I’ve been feeling.

Yesterday was my monthly LEMTRADA lab day. The phlebotomist comes to my house to collect them. It’s been the same woman for the past almost 5 years — since the beginning of my LEMTRADA journey. She’s been with me as I transitioned from a cane to a walker and finally to a wheelchair. She’s been with me through multiple hospital stays and two several months-long inpatient rehab stints (she came there to collect the labs). She’s been there through two moves — one from my parents’ to my new apartment, and from my apartment back to my parents’. She’s been with me as I had to stop driving. She’s been with me as I had to file (and get approved, thankfully) for SSDI.

Though she doesn’t know it, she’s represented an oddly comforting consistency over the past 5 years. Maybe it’s the Taurus in me — who knows. The LEMTRADA labs represent a benchmark of sorts. They are a timeline of my sad slow decline, post-LEMTRADA. Everything that happens in my life now is filtered through that lens.

LEMTRADA didn’t work for me. In fact, I had to begin another DMT (Ocrevus) after my final infusion in 2016 (in a perfect world, this shouldn’t have been necessary). That said, the labs are also a bitter reminder of how LEMTRADA failed me.

The drug “rules” require that for four years after our final infusion (mine was February 2016) we are monitored monthly to ensure that LEMTRADA isn’t fucking up our organs, system, etc. (any more so than it already viscerally has for me). I am grateful that my thyroid and kidneys have been spared from the drug’s grips over the past five years — a possibility I was warned about when I signed my life away prior to starting LEMTRADA in 2015. I caught a break, after all, I guess.

So, February 2020 is the end of my four year monitoring period. It’ll be the official end of my LEMTRADA journey. The end of an era. I feel oddly sad.

It’s weird.

-Daana

Episode 46 | Out of the Mouths of Babes [ Part II ] & Season 2 Reflections

Tune in to Episode 46 — the Season 2 finale of the Myelin & Melanin podcast!

We started Season 2 with reflections from the children in our lives. We only found it fitting to end Season 2 with part 2 of their conversation. 

Join us for the Season 2 finale of Myelin & Melanin. We’ll be back for Season 3 in January 2020, but stay tuned to our social media and YouTube channel for videos, bonus episodes and more.

If you enjoy the podcast, please take a minute to leave us a 5-Star rating/review on Apple Podcasts. Thanks for helping make Season 2 a success!

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Peace! 

Episode 46 | Out of the Mouths of Babes [ Part II ] & Season 2 Reflections

We started Season 2 with reflections from the children in our lives. We only found it fitting to end Season 2 with part 2 of their conversation.  Join us for the Season 2 finale of Myelin & Melanin. We’ll be back for Season 3 in January 2020, but stay tuned to our social media and YouTube channel for videos, bonus episodes and more.