Episode 25 — The Sum of Our Parts: Continuous Trauma, Anxiety and MS — feat. Dr. Virginia Seewaldt

Listen to Episode 25 of Myelin & Melanin! It’s our one year anniversary!

Being diagnosed with MS is a terrifying event. Being diagnosed with a chronic, potentially disabling and incurable disease is a traumatic event. It doesn’t end there, though. MS is a series of traumas — its unpredictability, and progressive nature create a lifelong litany of traumatic events that people with MS live with. Bring on the anxiety. Bring on the stress. Bring on a potential exacerbation due to the stress. It’s a cycle.

Dr. Virginia Seewaldt, PhD

Join us as we welcome psychologist Dr. Virginia (Ginny) Seewaldt, who talks us through some of these concepts as well as some fantastic techniques for managing anxiety in light of the continuous stress that MS brings. She even walks us through some of these techniques. You don’t want to miss this episode!

We also need to mention that today, January 19th, marks the one year anniversary of the podcast! Thank you all for listening and being on this journey with us.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify. Google Play Music, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

[ Episode 5 Recap ] It’s Not all in My Head

Let’s be honest being told that something is “wrong” with you and that you have been diagnosed with an illness with no known cure is completely mind-blowing.  We can’t speak for everyone but it has to be a shock to the system.  It seems as if a diagnosis can lead to a plethora of emotions, depression & anxiety are two which certainly stand out.

Depression can be difficult to manage on your own and when things go awry you may not know where to start to get help.  MS is hard.  There isn’t an easier way to say it.  The unpredictability of this illness can lead someone into a whirlwind of emotions.

According to the MS Society depression is one of the most common symptoms with people that have Multiple Sclerosis.  Of course, we all have highs & lows in life and I think what makes MS patients experience anxiety and depression is the unpredictability of the illness.  We may go to bed feeling strongwith the ability to move about with ease, then wake up in the morning not being able to lift your legs or even see.  Needless to say, it’s scary!

No, it’s NOT all in my head — is this really happening to me? A question that so many of us ask ourselves. How everyone manages their illness after the diagnosis is completely different.   You’re diagnosed, now what?  The control you thought you once had over your life is now in the hands of a disease.  That lack of control we mentioned in the podcast, is the green light for anxiety.

Anxiety doesn’t care what time of day that it decides to disrupt your life.  It creeps in — actually, it attacks your mind with a vengeance.  We may be experiencing numbness is our legs and feet then all of a sudden lose the ability to walk which makes it easy to fall into the web of anxiety.  Is this the start of another exacerbation?  Is something else wrong with me besides MS?  The “complex unpredictability”  nature of this disease can open a window to all types of emotions.  It’s important to listen to your body and talk to your doctor.  Remember that you are not alone and you aren’t exaggerating how you feel.  This is real and an adjustment to accepting a new normal.

Until next time…Love & Light!

D & D


Episode 5 — It’s Not All In My Head

Listen to Episode 5 of Myelin & Melanin!

You mean to tell me that I have to start worrying about my mental state in addition to my physical body? You’re kidding me, right?

This week, we will be talking about the realities of depression and anxiety, and how they relate to our MS.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

* Please forgive the sound quality of this podcast; we had some equipment difficulties.