Episode 55 | Food, Wellness Culture & Chronic Illness — feat. Anna Sweeney, MS, CEDRD-S

Tune in to Episode 55 of the Myelin & Melanin podcast!

Join us for a conversation with registered dietitian and MS Warrior, Anna Sweeney, MS, CEDRD-S.

Anna Sweeney, MS, CEDRD-S

We chat about diet and wellness culture, problematic “curative” MS diets, privilege, intuitive eating and more.

You can find Anna on Instagram and Twitter @dietitiananna as well as her website: http://wholelifeRD.com

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Episode 55 | Food, Wellness Culture & Chronic Illness — feat. Anna Sweeney, MS, CEDRD-S

Join us for a conversation with registered dietitian and MS Warrior, Anna Sweeney, MS, CEDRD-S. We chat about diet and wellness culture, problematic “curative” MS diets, privilege, intuitive eating and more. Stay tuned for this enlightening conversation.

Episode 54 | Synergy: Stress, Chronic Illness & Being Black [ Part II ] — feat. Dr. Donald E. Grant, Jr., PsyD

Dr. Donald E. Grant Jr., PsyD

Tune in to Episode 54 of the Myelin & Melanin podcast.

Join us for Part II of our series on stress, chronic illness & Black mental health, featuring Psychologist Dr. Donald Grant, Jr., PsyD. We talk about oppression. intergenerational trauma, as well as the physiological manifestations of stress. We also discuss links to chronic illness. Could there possibly be a link between intergenerational trauma and MS in Black people?

Dr. Grant is a socio-cultural analyst and mental health expert who has served as an educator, media analyst, child welfare administrator, trainer, presenter, and social services advocate. Dr. Grant currently occupies two roles as the Executive Director of Mindful Training Solutions, LLC (MTS) and Executive Director of Pacific Oaks College’s Center for Community and Social Impact.

Find him on Twitter at @DrGrantJr and Instagram at @dr_grant.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

http://myelinmelanin.libsyn.com/episode-54

Episode 53 | Synergy: Stress, Chronic Illness & Being Black [ Part I ] — feat. Dr. Donald E. Grant, Jr., PsyD

Tune in to Episode 53 of the Myelin & Melanin podcast.

Join us for Part I of our series on stress, chronic illness & Black mental health, featuring Psychologist Dr. Donald Grant, Jr., PsyD. We talk about oppression. intergenerational trauma, as well as the physiological manifestations of stress. We also discuss links to chronic illness. Could there possibly be a link between intergenerational trauma and MS in Black people?

Dr. Donald E. Grant, Jr., PsyD

Dr. Grant is a socio-cultural analyst and mental health expert who has served as an educator, media analyst, child welfare administrator, trainer, presenter, and social services advocate. Dr. Grant currently occupies two roles as the Executive Director of Mindful Training Solutions, LLC (MTS) and Executive Director of Pacific Oaks College’s Center for Community and Social Impact.

Find him on Twitter at @DrGrantJr and Instagram at @dr_grant.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Episode 53 | Synergy: Stress, Chronic Illness & Being Black (Part I) — feat. Dr. Donald Grant, Jr, PsyD.

Join us for Part I of our series on stress, chronic illness & Black health, featuring Psychologist Dr. Donald Grant, Jr., PsyD. We talk about oppression. intergenerational trauma, as well as the physiological manifestations of stress. We also discuss links to chronic illness. Could there possibly be a link between intergenerational trauma and MS in Black people?

Episode 25 — The Sum of Our Parts: Continuous Trauma, Anxiety and MS — feat. Dr. Virginia Seewaldt, PhD

Listen to Episode 25 of Myelin & Melanin! It’s our one year anniversary!

Being diagnosed with MS is a terrifying event. Being diagnosed with a chronic, potentially disabling and incurable disease is a traumatic event. It doesn’t end there, though. MS is a series of traumas — its unpredictability, and progressive nature create a lifelong litany of traumatic events that people with MS live with. Bring on the anxiety. Bring on the stress. Bring on a potential exacerbation due to the stress. It’s a cycle.

Dr. Virginia Seewaldt, PhD

Join us as we welcome psychologist Dr. Virginia (Ginny) Seewaldt, who talks us through some of these concepts as well as some fantastic techniques for managing anxiety in light of the continuous stress that MS brings. She even walks us through some of these techniques. You don’t want to miss this episode!

We also need to mention that today, January 19th, marks the one year anniversary of the podcast! Thank you all for listening and being on this journey with us.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify. Google Play Music, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

Episode 25 | The Sum of Our Parts: Continuous Trauma, Anxiety and MS — feat. Dr. Virginia Seewaldt

Being diagnosed with MS is a terrifying event. Being diagnosed with a chronic, potentially disabling and incurable disease is a traumatic event. It doesn’t end there, though. MS is a series of traumas — its unpredictability, and progressive nature create a lifelong litany of traumatic events that people with MS live with.

[ Episode 14 Recap ] Ordering Disorder: MS, Compulsion & Control

Does the word control stir up an emotion for you?  For most people, when they think of control they feel confident and strong; as if they have a handle on their life.  But that isn’t always the same for those of us with MS.  It’s as if we struggle to gain power while holding on to a mask that shields the fear and uncertainty.

What I found, as I manage & navigate this wild illness, is I’ve lost the feeling of having control.  Daana and I both have had over a decade of fighting with a monster that does not care about us.  Quite often, the lack of control turns us into multi-taskers.  We carry the shield to cover all the emotions along with bringing new challenges.

As we discussed throughout the Podcast, having an MS diagnosis can make a person feel we are in a constant state of uncertainty.  The fact that our bodies have been invaded — well actually our bodies attack itself — will force you into wanting to take charge.

We chuckle, but the determination can (and does according to various studies) lead one to OCD or other disorders (i.e., an eating disorder).

Take a look and read some of the articles we mentioned in Episode 14.  Feel free to comment or send us a message!

 

Love and Light,

D & D

Episode 14 — Ordering Disorder: MS, Compulsion & Control

Listen to Episode 14 of Myelin & Melanin!

Ordering disorder. Controlling chaos. These are no easy tasks when MS is the culprit. More importantly, perhaps, is this even possible? Join us as we share our experiences and reflections on these important issues.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.

[ Episode 13 Recap ] We Wear the Mask: Depression, Suicide & MS

Everyone faces moments in life where things may not be picture perfect.  For some, it is easy to “snap out of it” and move forward, but that isn’t always true for those of us that have a chronic illness.

Multiple Sclerosis is a progressive disease that is honestly quite frustrating.  Many people with MS face a daily struggle because we try to fit in, or appear as normal as possible.  It’s tough when your legs have turned into loose noodles, or your shirt isn’t buttoned evenly because you can’t feel your fingers.  So what do we do?  We end up wearing a mask!  Of course some days are much easier to manage than others, however we still have an invisible shield covering our outer shell.  Why?  Because this HURTS!

Let me speak emotionally first because it’s a given that there is some level of physical pain associated with MS (i.e. muscle spasms, nerve, & eye pain).  Those of us with MS  face tremendous challenges each day.  Feeling as if you are a burden, leaving a job you love because of your disability, not being heard or understood can lead many down a long dark road.  Emotions take control which leaves you with no choice.  You grab your mask and make sure it’s on tight.  Facing the outside world is too much so we remain covered and escape into our own world.  Take a look at the article we talked about in episode 13.  It explains how people living with MS are emotionally at ‘risk for several co-morbidities.”

 

MS and Risk of Depression, Anxiety, and Suicidal Thoughts

People living with multiple sclerosis are at risk for several comorbidities, including depression and anxiety, both of which can be associated with suicidal thoughts and behavior. There have been several studies conducted over the years investigating suicide in MS patients. Here are the results of a few.

If you are feeling as if you need to speak with someone help is there.  You are not alone.  The Multiple Sclerosis Association of America has people available on their helpline from 8:30 am – 5:00 pm, (800) 532-7667 ext. 154.  Email MSquestions@mymsaa.org or chat online at www.mymsaa.org.

Home

Skip to main content We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals. 1-800-273-8255 Three-Digit Number for Suicide Prevention Recently, the FCC recommended that 988 be designated as a national crisis hotline.

https://suicidepreventionlifeline.org/

 ( 800) 273-TALK (8255)

Help is there.

Love

D & D

Episode 13 — We Wear the Mask: Depression, Suicide & MS

Listen to Episode 13  of Myelin & Melanin!

In light of the recent suicides of Kate Spade and Anthony Bourdain, we felt it was important to highlight the topic of suicide and MS. It is important for people to consider that there is no “one size fits all” approach to dealing with suicide — especially as it relates to chronic illness. Join us as we share our thoughts on this important topic.

Check us out, listen and subscribe to the podcast on iTunes or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on!

We also have a new YouTube channel. Search “Myelin and Melanin” on YouTube to find us — check us out and subscribe!

Please feel free to reach out and comment with questions, feedback or suggestions for what you’d like to hear in future episodes.