BONUS | Connecting the Black MS Community to Research — feat. Tracy A. Todd

Today we are joined by author, advocate, and fellow MSer Tracy A. Todd. Tracy shares info with us about her forthcoming app — BAAMS. Don’t miss this informative talk.

Tracy A. Todd describes herself as an author, artist, and advocate for MS.  Diagnosed with MS in 2002, Tracy has overcome neurological challenges since adolescence and has been fighting back ever since. The local NMSS chapter regards Tracy as an MS Ambassador, and a video for the newly diagnosed produced by the MSAA features her as a presenter.

Tracy served as a facilitator for the SF Bay Area African Americans with MS Self-Help Group where, during her three years of service, members supported as they shared the nuances of MS within the Black population. Tracy has had speaking engagements with pharmaceutical companies and health care professionals who benefited from information relayed from the ‘patient-perspective.’

She’s written her medical memoir, “When The Body Says No — A Learn, Laugh, Love Story” and founded ‘We Write for the Fight’, an online MS writers group that has produced four volumes of Something On Our Minds, Anthologies to Benefit the National MS Society and the Accelerated Cure Project.

Tracy is a member of the Engagement Committee for the iConquer MS research portal and is currently developing an app for the Black/African American MS community in an effort to bridge the gap between the BAAMS community and  MS Health Care Professionals and Researchers. Tracy holds a BS in Information Systems and resides in Northern California.

Check out her website:

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Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.