Damn Those “Memories”

I was having a glorious Sunday. Feeling good. Lipstick was fire. All the things. I was doing my usual Sunday routine — drinking my Starbucks, listening to Spotify, and browsing social media.

It was a good day.

Daana and her nephew, TJ, in 2013

And then I opened up Facebook, and up popped a photo memory from 7 years ago. It was an adorable picture of my now 13-year old nephew and I at his kindergarten graduation. 

The picture melted my heart and broke it at the same time. I remembered the day vividly. 

Sigh.

I was still walking back then. Barely. I remember being late to the graduation ceremony because there was no parking (let alone a handicapped parking space), and I had to park a block away. It took me more than 30 minutes to hobble my way into the school. I was using a cane at the time (my pride still prevented me from using a walker — y’all know how that is).

Looking at that photo made me so sad. I felt sad thinking about how utterly exhausted I was in the picture.

Beyond that, I was grieving the Daana in the picture. The Daana who was still walking and driving. The Daana who lived a life that was not yet as ravaged and upended by MS.

Seven years have passed and I barely remember the life I lived back then. I was in control; I was the boss. MS shows me who’s boss now.

Fuck MS, y’all.

Stay Tuned — Azure Antoinette!

We’re excited for our upcoming two-part conversation with “the Maya Angelou of the Millennial generation” — Azure Antoinette. Did you know that she was on a recent episode of Grey’s Anatomy?

Why ‘Grey’s Anatomy’ Is Putting Disabled Actors Front and Center

In last night’s episode of Grey’s Anatomy, “Breathe,” we were graced with some very exciting and very welcome blasts from the past: McSteamy (Eric Dane) and Lexie (Chyler Leigh) joined Meredith, still trapped in a coma, on the beach-in-her-brain for some real heart-to-hearts.

Check out her super dope duet with Kevin McKidd!

Chasing Cars // Azure Antoinette & Kevin McKidd

DOWNLOAD – https://music.apple.com/album/chasing-cars/1533238238?i=1533238240.Azure Antoinette + Grey’s Anatomy star Kevin McKidd have teamed up to create th…

Find Azure on Instagram @hello_azureantoinette, Twitter @AzureAntoinette, and her website: azureantoinette.com. Go check out the article to which we refer in the episode: Why Representation Matters When Living with MS!

https://themighty.com/2021/03/why-representation-matters-when-living-with-ms/

Stay tuned!

Episode 85 | Reflections on Brain Surgery, Trigeminal Neuralgia & MS — feat. Marti Hines

Join us for a conversation with the fabulous Marti Hines. Marti shares her experiences about her 2018 MS diagnosis, her recent brain surgery to relieve trigeminal neuralgia symptoms and her overall dopeness.

Over the past two decades, Marti Hines has positioned herself as a standout independent event producer for filmmakers, celebrities, and politicians. In 2015, she co-founded the production company Dique Pic Productions which focuses solely on content created by women of color. Her current project “Paper Friends” is airing on BETHer now. 

Check her out on YouTube on her show Marti’s MS Life. Find her on Instagram @martismslife.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Episode 85 | Reflections on Brain Surgery, Trigeminal Neuralgia & MS — feat. Marti Hines

Join us for a conversation with the fabulous Marti Hines. Marti shares her experiences about her 2018 MS diagnosis, her recent brain surgery to relieve trigeminal neuralgia symptoms and her overall dopeness. Over the past two decades, Marti Hines has positioned herself as a standout independent event producer for filmmakers, celebrities, and politicians.

BONUS | Mourning the “Old Self” — Paid Partnership with Healthline

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…

Join us today as we reflect on our most recent chat on the MS Healthline app! We talked about what it looks like to mourn your “old self”. Tune in as we do some debriefing.

The remainder of our hour-long live chat schedule is
as follows:

Tuesday, 7/28, 4PM EST:
– PTSD & Continuous Trauma

Tuesday, 8/4, 4PM EST:
– Reframing Productivity and YOUR New Narrative

**A bonus podcast episode will air the Thursday after each chat.

The link to download the app is in our bio on IG, or here: https://apps.apple.com/us/app/id1040195462?mt=8

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

BONUS | Mourning the “Old Self” — Paid Partnership with Healthline

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…⠀ Join us today as we reflect on our most recent chat on the MS Healthline app! We talked about what it looks like to mourn your “old self”. Tune in as we do some debriefing.

Episode 83 | Reflections on Grief After an MS Diagnosis — Paid Partnership with Healthline

Join us today as we chat and reflect about grief after an MS diagnosis. It’s layered — it’s a process.

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…⠀

The hour-long live chat schedule is ⠀
as follows:⠀

Tuesday, 7/21, 4PM EST:⠀
– Mourning Your Former Self

Tuesday, 7/28, 4PM EST:⠀
– PTSD & Continuous Trauma

Tuesday, 8/4, 4PM EST:⠀
– Reframing Productivity and YOUR New Narrative

**A bonus podcast episode will air the Thursday after each chat.⠀

The link to download the app is here: https://apps.apple.com/us/app/id1040195462?mt=8

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 82 | A Chat With Superman: Basketball, Perseverance & MS — feat. Chris Wright

Today we are joined by professional basketball player, Chris Wright. Chris was the first player in NBA history to be diagnosed with MS. We chat about his diagnosis story, basketball, and his unmatched perseverance. Don’t miss this engaging conversation.

Chris Wright is an American professional basketball player for Twarde Pierniki Toruń of the Polish Basketball League (PLK). When he played for the Dallas Mavericks in 2013, he became the first known player in National Basketball Association (NBA) history to have been diagnosed with multiple sclerosis.

Find Chris on Twitter @SELF_MADEest89 and Instagram @chriswright_11. Check out his podcast Dawg Talk wherever you find podcasts.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 81 | The Fire Next Time: Keep Your Apologies, Do The Work — feat. Dr. Linda Chavers, PhD, Damian Washington & Carlos Kareem Windham

Join us for the 4th of July conversation everyone needs to be having. We are joined by former guests Dr. Linda Chavers, PhD, Damian Washington, and Carlos Kareem Windham, and chat about racism, antiracism, white folks doing the work, and saving their apologies.

Find Carlos on Twitter @caballonegrito and Instagram @elcaballonegrito. Check out his show, “Smoke and Mirrors” on Facebook.

Find Linda on Instagram @lindachaverslovesherdog, Twitter @dorismariahphd, and at her website: www.lindachaverswrites.com .

You can find Damian on Instagram @damianwashington, Twitter @deedubs57, and his MS YouTube vlog “No Stress MS”.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 80 | You Have a Voice: MS, Activism & Advocacy — feat. Jenna Green

Join us for a conversation with the always engaging blogger, MS advocate, and beloved member of the MS community — Jenna Green. We chat about MS, advocacy, activism, and using your voice. 

Check out Jenna’s blog at http://fullofgritanggrace.com. Find her on Instagram and Twitter @thejennagreen. 

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

https://myelinmelanin.libsyn.com/episode-80-you-have-a-voice-ms-activism-advocacy-feat-jenna-green

BONUS | Muting Whiteness, BLM, and Other Reflections — feat. Anna Sweeney, MS, RDN, CEDRD-S

Join us for a bonus episode with Anna Sweeney, MS, RDN, CEDRD-S. We talk about Black lives matter, muting whiteness, and the responsibility that white influencers have to use their platforms for justice.

You can find Anna on Instagram and Twitter @dietitiananna as well as her website: http://wholelifeRD.com

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 78 | How Are You Really Doing? : Survival, MS, and Racial “Healing” in 2020 – feat. Dr. Linda Chavers, PhD

Today we are joined by Dr. Linda Chavers, Ph.D. We chat about her MS story, racial “healing” in 2020, and a recent article she wrote in the Boston Globe on race, racism, and white people.

Linda Chavers is a Lecturer in the Department of African and African American Studies at Harvard. She completed her Ph.D. in African American Studies with a focus on literature in 2013 from Harvard University. She writes essays and memoir for various publications such as Gawker, Dame, Elle, The Offing, and Rumpus. She’s also a fellow MSer.

Find Linda online at her website: www.lindachaverswrites.com; find her socials there. The article we discuss in the episode can be found here: https://www.bostonglobe.com/2020/06/09/magazine/what-too-many-white-people-still-dont-understand-about-racism/

You can find us on the web at https://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — http://patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

If you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.