Category: Season 3

Episode 91 | MS and an HSCT Journey — feat. Tanya-Marie Paul

Join us as we welcome back vlogger, fellow MSer, and HSCT recipient, Tanya-Marie Paul to the show. We chat, today, about her MS and HSCT journeys.

Tanya-Marie was diagnosed with MS in June of 2003 although devastated at the time, she fought ahead. Since then she has raised 2 children, graduated from college and became a MS ambassador traveling the country speaking to our community this is what she calls her passion job.

Recently, she underwent HSCT after multiple DMTs failed her and she vlogs about it. Tanya-Marie currently lives in NJ and is single but accepting applications. When not working at her day job or her passion job, she is always plotting to get to the beach.

Find Tanya-Marie on IG and Twitter @tanyamarie_p. Her YouTube vlog is http://youtube/TanyaMarieP

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

BONUS | Connecting the Black MS Community to Research — feat. Tracy A. Todd

Today we are joined by author, advocate, and fellow MSer Tracy A. Todd. Tracy shares info with us about her forthcoming app — BAAMS. Don’t miss this informative talk.

Tracy A. Todd describes herself as an author, artist, and advocate for MS.  Diagnosed with MS in 2002, Tracy has overcome neurological challenges since adolescence and has been fighting back ever since. The local NMSS chapter regards Tracy as an MS Ambassador, and a video for the newly diagnosed produced by the MSAA features her as a presenter.

Tracy served as a facilitator for the SF Bay Area African Americans with MS Self-Help Group where, during her three years of service, members supported as they shared the nuances of MS within the Black population. Tracy has had speaking engagements with pharmaceutical companies and health care professionals who benefited from information relayed from the ‘patient-perspective.’

She’s written her medical memoir, “When The Body Says No — A Learn, Laugh, Love Story” and founded ‘We Write for the Fight’, an online MS writers group that has produced four volumes of Something On Our Minds, Anthologies to Benefit the National MS Society and the Accelerated Cure Project.

Tracy is a member of the Engagement Committee for the iConquer MS research portal and is currently developing an app for the Black/African American MS community in an effort to bridge the gap between the BAAMS community and  MS Health Care Professionals and Researchers. Tracy holds a BS in Information Systems and resides in Northern California.

Check out her website: http://tracyatodd.com

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 89 | MS and Art as Spiritual Practice — feat. Marcia Jones

Today we are joined by noted contemporary artist, art professor, and fellow MSer, Marcia Jones. We chat about MS and art as a spiritual practice

Marcia Jones received her BA in Fashion Design from Clark Atlanta University, completed studies at the Art Student League NY, and earned her Master of Fine Art in painting from the University of North Carolina at Greensboro. and is currently seeking programs to pursue her Doctorate in Education.This image has an empty alt attribute; its file name is IMG_7593-2.jpg

Jones served as a W.E.B Dubois Faculty Fellow at Clark Atlanta University where she was a Lecturing Professor of Art. Jones was selected by Fulton County Arts to attend The Caversham Printmaking Fellowship in South Africa, serving as a Visiting Artist at the University of Kwazulu Natal.

In 2006, she received an invitation to attend the Spelman College Taller Portobello Artist Colony in Taller Portobello, Panama. Jones was awarded by the Historical Auburn Ave. Creative Council a 9 month Artist Residency at the Studioplex Arts Complex Atlanta, GA, and conducted her Visual Emotion workshops at the SE Woman Herbalist Conference.

In 2011 Jones was selected as The Mc Coll Center for Visual Arts Harvey B Gantt Winter Resident, Charlotte NC. She worked as an Adjunct Professor of Art at Central Piedmont Community College, Charlotte NC where she was an Adjunct Professor at The Art Institute Charlotte, Johnson C Smith University.

Find Marcia on IG at @marciajonesart.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

BONUS | Reframing Your “Productivity” Narrative #BecauseMS — Paid Partnership with Healthline

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…⠀

Join us today as we reflect on our most recent chat on the MS Healthline app (on 8/4) in the “Wellness” group! We talked about what it means to reframe your narrative when MS impacts your ability to work.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 87 | Fashion, Inclusion, and MS in the UK — feat. Roxanne Chanel Murray

Today we are joined by English MS Warrior and fashion stylist Roxanne Chanel Murray. We chat about fashion, inclusion in the UK, and the importance of the voices of POC in the MS narrative.

Connect with Roxanne on Instagram @roxannechanelmurray.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

BONUS | Medical PTSD & Continuous Trauma — Paid Partnership with Healthline

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”.

Join us today as we reflect on our most recent chat on the MS Healthline app (on 7/28)! We talked about medical PTSD and continuous trauma. It was a very intense chat!

Our final live chat is:

Tuesday, 8/4, 4PM EST:⠀
– Reframing Productivity and YOUR New Narrative ⠀
⠀
**A bonus podcast episode will air the Thursday after each chat.⠀
⠀
The link to download the app is in our bio on IG, or here: https://apps.apple.com/us/app/id1040195462?mt=8⠀

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 85 | Reflections on Brain Surgery, Trigeminal Neuralgia & MS — feat. Marti Hines

Join us for a conversation with the fabulous Marti Hines. Marti shares her experiences about her 2018 MS diagnosis, her recent brain surgery to relieve trigeminal neuralgia symptoms and her overall dopeness.

Over the past two decades, Marti Hines has positioned herself as a standout independent event producer for filmmakers, celebrities, and politicians. In 2015, she co-founded the production company Dique Pic Productions which focuses solely on content created by women of color. Her current project “Paper Friends” is airing on BETHer now. 

Check her out on YouTube on her show Marti’s MS Life. Find her on Instagram @martismslife.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play, and everywhere you listen to podcasts.

Peace!

Episode 85 | Reflections on Brain Surgery, Trigeminal Neuralgia & MS — feat. Marti Hines

Join us for a conversation with the fabulous Marti Hines. Marti shares her experiences about her 2018 MS diagnosis, her recent brain surgery to relieve trigeminal neuralgia symptoms and her overall dopeness. Over the past two decades, Marti Hines has positioned herself as a standout independent event producer for filmmakers, celebrities, and politicians.

BONUS | Mourning the “Old Self” — Paid Partnership with Healthline

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…

Join us today as we reflect on our most recent chat on the MS Healthline app! We talked about what it looks like to mourn your “old self”. Tune in as we do some debriefing.

The remainder of our hour-long live chat schedule is
as follows:

Tuesday, 7/28, 4PM EST:
– PTSD & Continuous Trauma

Tuesday, 8/4, 4PM EST:
– Reframing Productivity and YOUR New Narrative

**A bonus podcast episode will air the Thursday after each chat.

The link to download the app is in our bio on IG, or here: https://apps.apple.com/us/app/id1040195462?mt=8

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

BONUS | Mourning the “Old Self” — Paid Partnership with Healthline

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…⠀ Join us today as we reflect on our most recent chat on the MS Healthline app! We talked about what it looks like to mourn your “old self”. Tune in as we do some debriefing.

Episode 83 | Reflections on Grief After an MS Diagnosis — Paid Partnership with Healthline

Join us today as we chat and reflect about grief after an MS diagnosis. It’s layered — it’s a process.

We’ve partnered with Healthline to host a series of live chats on “Managing Grief After an MS Diagnosis”…⠀

The hour-long live chat schedule is ⠀
as follows:⠀
⠀
Tuesday, 7/21, 4PM EST:⠀
– Mourning Your Former Self⠀
⠀
Tuesday, 7/28, 4PM EST:⠀
– PTSD & Continuous Trauma⠀
⠀
Tuesday, 8/4, 4PM EST:⠀
– Reframing Productivity and YOUR New Narrative ⠀
⠀
**A bonus podcast episode will air the Thursday after each chat.⠀
⠀
The link to download the app is here: https://apps.apple.com/us/app/id1040195462?mt=8⠀

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.

Episode 82 | A Chat With Superman: Basketball, Perseverance & MS — feat. Chris Wright

Today we are joined by professional basketball player, Chris Wright. Chris was the first player in NBA history to be diagnosed with MS. We chat about his diagnosis story, basketball, and his unmatched perseverance. Don’t miss this engaging conversation.

Chris Wright is an American professional basketball player for Twarde Pierniki Toruń of the Polish Basketball League (PLK). When he played for the Dallas Mavericks in 2013, he became the first known player in National Basketball Association (NBA) history to have been diagnosed with multiple sclerosis.

Find Chris on Twitter @SELF_MADEest89 and Instagram @chriswright_11. Check out his podcast Dawg Talk wherever you find podcasts.

You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.

Consider supporting us through our Patreon — patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.

Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.

As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.

Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.

Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts.

Peace!

Myelin & Melanin™ Podcast

Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) — two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA.