Episode 38 | When MS is Trippin’: Talking Summer Hacks with Ms. Tripping on Air — feat. Ardra Shephard

Tune into Episode 38 of Myelin & Melanin!

Tune in as we chat with the fabulous Ardra Shephard — Ms. Tripping on Air — about summer hacks for MSers, hypothetical MS swag bags (an awesome idea, right?), underwear you can get drunk and pee your pants in, and internalized ableism. You don’t want to miss it.

You can check her blog out at  http://trippingonair.com (she’s on Instagram @ms_trippingonair and Twitter @tripping_onair)

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 38 | When MS is Trippin’: Talking Summer Hacks with Ms. Tripping on Air — feat. Ardra Shephard

Tune in as we chat with the fabulous Ardra Shephard — Ms. Tripping on Air — about summer hacks for MSers, hypothetical MS swag bags (an awesome idea, right?), underwear you can get drunk and pee your pants in, and internalized ableism. You don’t want to miss it.

Episode 28 — MS and the Cruelest of Intentions: Selma Blair, Awareness & Visibility

Tune in to Episode 28 of Myelin & Melanin!

Selma Blair and the Instagram post disclosing her MS in October 2018.

MS has been all over the media this week! First, it was the sighting of actress Selma Blair (who disclosed she has MS via Instagram in October 2018) with her fabulous cane on the red carpet at the 2019 Oscars. Then, fast forward to the interview she did with Robin Roberts on Good Morning America a few days later. Her candid, brave and transparent interview has been the talk of social media. And for good reason — it is rare that chronic illness and disability are given any visibility (especially in Hollywood). It was a beautiful moment. The awareness she brought to multiple sclerosis is priceless.

One of our favorite MS bloggers, Ardra Shephard from the blog “Tripping on Air”.

Join us as we share our reflections on Selma Blair’s interview, as well as discuss the concept of disability visibility. We also discuss an article written by one of our favorite MS bloggers — titled “Why Is Selma Blair So Important Right Now”, and how her discussion of mobility aids mirrors our own realities.

Check us out, stream and subscribe to the podcast on Apple Podcasts, Spotify, Google Play, Stitcher or SoundCloud. Also, follow us on Facebook, Twitter and Instagram @myelinmelanin to keep abreast of our latest goings on! You can also find us on YouTube.

Episode 28 | MS and the Cruelest of Intentions: Selma Blair, Awareness & Visibility

MS has been all over the media this week! First, it was the sighting of actress Selma Blair (who disclosed she has MS via Instagram — https://www.instagram.com/p/BpKjP_7FnWQ/ – in October 2018) with her fabulous cane on the red carpet at the 2019 Oscars.

MS, Mobility and Erasure: A Problematic Narrative

Y’all. Maybe I’m extra emotional lately, but I read an article (inspiring, really) that once again triggered me. Her story isn’t what triggered me, because it is quite inspirational, but the folks (including myself) that are silenced when peddling this inspoporn (yes, I said) narrative, bothers me. A lot.

The brief article shares the story of a woman with MS who runs, with her husband, in a Marine Corps marathon. She says,“I think a lot of people don’t understand because people do associate MS with a wheelchair and it’s not true.” And she’s right. MS does not automatically mean that one will end up in a wheelchair. I, too, grow tired of the automatic assumption that MS equates wheelchair. It is uninformed. And couldn’t be further from the truth.

That said, what this narrative does too, perhaps unintentionally, is validate the assumption that people with MS who still have the ability to walk are  living their best lives (and in effect living better), and somehow free from the grips of this awful MonSter, and people who use wheelchairs have somehow succumbed to the beast and are…stuck (and the focus of your pity).

It is rare that we hear inspirational stories in mainstream media (I’m not talking about publications geared towards people with MS) about people with MS who use wheelchairs and are living their best lives. We live in a society that values an able body over anything.

MS is a complex and unpredictable disease. Its symptoms can not and should not be viewed hierarchically. They are all awful.

Does someone who is able to walk unassisted, but suffers from acute and long term memory loss and cognitive issues somehow live better than someone, who because of spasticity or paralysis, uses a wheelchair, but lives life free from cognitive issues? Of course not. They are different chapters in the same book. 

People who suffer with MS should not be (innocuously) shamed because the way their disease has manifested itself scares people or makes folks uncomfortable. Our lives are just as meaningful, and should be celebrated as such. I am talking to people with MS, too. Some of y’all are guilty of this.

Lets not rank people’s MS successes by how well they maintain their physical abilities. It dishonors the experience of all MS Warriors.

Tripping On Air

Tripping On Air. First, what an awesome title (and look at her logo, y’all — everything). Second, I absolutely love her blog. I am looking forward to blog binging (is that a real phrase, or did I make that up) today:

TRIPPINGONAIR

Her Instagram feed has been such an inspiration to me, as I am getting adjusted to life in public on my wheels. I have sheltered myself for months, afraid of what others will think of me. I’m slowly getting out of my funk. It’s been hard, but I am thankful to others for sharing their experiences. It’s not easy. I admire their courage.

This woman is such an inspiration.

Love and Light.